We propose that traditional methods to protect patient privacy and control won’t work in the new digitized health ecosystem where data is collected, transmitted, aggregated across thousands of nodes instantaneously. We examine the merits and limitations of proposed alternatives like the fiduciary framework that imposes accountability on those that use the data; privacy by design principles that rely on technological safeguards against abuse; or regulations.
October 14, 2021 Author(s): Satchit Balsari, Mathew Kiang, Caroline Buckee
Building integrated translational pipelines that use data rapidly and effectively to address health effects of natural disasters will require substantial investment, which must rely on evidence of which approaches improve outcomes. But promising solutions are available.