Topic: Data Privacy

We propose that traditional methods to protect patient privacy and control won’t work in the new digitized health ecosystem where data is collected, transmitted, aggregated across thousands of nodes instantaneously. We examine the merits and limitations of proposed alternatives like the fiduciary framework that imposes accountability on those that use the data; privacy by design principles that rely on technological safeguards against abuse; or regulations.

This white paper identifies the technical, regulatory, and translational gaps that preclude the effective integration of novel data streams into field response.

Building integrated translational pipelines that use data rapidly and effectively to address health effects of natural disasters will require substantial investment, which must rely on evidence of which approaches improve outcomes. But promising solutions are available.